A WORLD WITHOUT ME

IAFME International Alliance for Myalgic Encephalomyelitis

WHAT IS ME

Myalgic encephalomyelitis (ME) is a chronic neurological disease. Its symptoms affect many body systems, especially the nervous and immune systems.

15 to 30 million

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15 to 30 million people in the world affected by ME.

75%

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People of all ages, gender, and socioeconomic statuses are affected but 75% of people with ME are women.

1 in 4

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1 in 4 people with ME are so severely ill that they are housebound, and

often bed-bound.

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The causes are not known and there is no cure for the disease today. There is a significant lack of funding for biomedical research for ME.

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The economic burden of disease in Europe is estimated at EUR 32 million

(Euromene, 2015).

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Patient management and care are inadequate.

WHO WE ARE